Acccording to Wikipedia, a manifesto is a public declaration of principles and intentions, often political in nature. The Doctors 2.0 & You manifesto is not political. It is a collaborative work in progress. Our goal is to identify the ways in which the inclusion of collaborative digital tools and social media platforms can improve care and translate this into the words of a manifesto.
Our point of reference, is The Cluetrain Manifesto, a set of 95 theses put forward as a manifesto, or call to action, for all businesses operating within the newly-connected marketplace.
What does Health Care have to do with this? Everything! The Cluetrain Manifesto tells us that the market is the conversation ; the Internet facilitates the bypassing of formal hierarchies creating a more informed marketplace and consumer through those conversations. Substitute "health care" for market place and healthcare organizations for businesses, and we're ready to move forward!
The list below was collated by Janine Budding a few years ago...when we launched Doctors 2.0 & You, but it is still current! Thought I'd add it to this blog for the conversation.
Doctors 2.0 & You Manifesto in 85 sentences
1. Health is co-creation.
2. Health 2.0 is win-win: care actors are better trained to support a more informed patient.
3. Health 2.0 is a permanent round table between all actors in society for the creation
of a citizenship of health ... all members of the same team!
4. Social Media have been widely adopted throughout the world and healthcare; professionals are no different than other people
5. “We are Smarter than Me” in coping with disease.
6. The Social Web is leading into co-creation of a new participatory medicine
7. Let's go from the former Isolation of Illness to the We of the Wellness thanks to hyper connectivity.
8. Physicians should understand the social changes and their changed role in healthcare
systems, (which in many countries are in dire straits) and the emergence of a new breed of
9. Social media brings an unprecedented ability for people to collaborate continuously
on a global basis. This will enable scientists to quicken the pace of discovery and
research leading to a greater understanding of disease with better treatments faster
than ever before.
10. Social media includes the challenging issue whether the content complies with
regulations. Social media will have to fall in line with the spirit of these regulations.
11. Social media offers us the advantage to reach out across multiple generations of
patients to increase the dissemination of information
12. There is a need for an active and critical role in the digital public space.
13. We need to “Mind the Gap” between social media networks of patients and those of
healthcare professionals. Bridging the gap will bring us a a step further.
14. Patient-centric care is a hybrid of Internet-based education, mHealth
technologies, telehealth, and provider supervision and visits.
15. The key is that the patient is the source of critical information and engagement.
16. Social medias are primarily used to teach and to learn and hardly at all to treat. Since treating
patients is Healthcare’s core business, these networks have not reached that core yet.
17. Health convos on the Social Web are driven by Generosity and the Joy Factor.
18. The World is flat. Healthcare is now Horizontal.
19. There may be a need for more robust platforms for safe use of SoMe in healthcare.
20. We should not focus on technology too much and we should certainly not use this
argument as a reason to postpone innovation.
21. Diseases, treatments, healthcare actors are now convos on the Social Web
22. Adaptative Darwin Theory is fueling the healing connections at the Social Web; it´s
not Serendipity, nor forced or guided connections
23. Healthcare Social Networks and online conversations are challenging and transforming
the establishment and status quo of the Healthcare arena controlling the power of
education, professional and patient associations, etc
24. The question is not whether physicians or healthcare opinion leaders have to
use social networks or have to blog, but if they are aware of the challenges and
social responsibility in these times of epatients, ehealth and never ending online
25. The huge power of healthcare conversations will bring down the existing and constricting
26. A patient is not a diagnosis but a human being in need of compassion.
27. Health 2.0 should improve the quality of exchange and management of patients
when involving all stakeholders; professionals & patients 2.0.
28. Medical professionals of the future have to be team builders between social media,
telemedicine, patients, healthcare providers and healthcare insurance and payers.
29. We need to move from evidence based medicine to science-based medicine and find
a way to bring the latest research directly to the patients, doctors.
30. The Internet is enabling conversations among patients and doctors that were simply
not possible in the era before the mass use of internet.
31. TeleHealth has to be globally acknowledged by medical professionals as a sound
alternative for meeting the patient in his clinic.
32. With the introduction of eHealth, medical professionals have to refrain from income
driven perverse stimuli.
33. The Internet provides us with new ways to bring the latest research directly
to patients and the doctors are co-investigators in the search for the desired
improvement of Health care.
34. These networked conversations are enabling powerful new forms of social
organization and knowledge exchange to emerge.
35. As a result, patients are getting smarter, more informed, more organized.
Participation in their treatment changes healthcare fundamentally.
36. Crowdsourcing patients and doctors have figured out that they get far better
information and support from one another than from books and research. Health
care in co-creation is about adding value to the quality and speed of treatments for
common and rare diseases.
37. “Stop just marketing, Start socializing” Bye Loneliness, Hello Community!
38. Patients who come to the medical appointment with information about their
symptoms are eager to understand what needs to be done to cure their
disease and are more actively engaged with their doctors.
39. There are no secrets. The networked crowd knows more than a doctor or hospital
does about their own products. And whether their treatment is good or bad, they tell
40. “Stop just marketing, Start socializing”
41. The legalistic requirements of EBM, such as its insistence on treatments that have
met the “gold standard” of “well-designed, large-scale, double-blind, randomized,
placebo-controlled, clinical trials”, actually prevent doctors from effectively
diagnosing and treating patients.
42. Social is Healing
43. Imagine a world where every individual had the option to speak to the best doctors in
the world, where getting multiple opinions or an average opinion on a condition was
44. Collaborative medicine will change the level of care some third world patients
45. The internet had the catalyst role of democratizing medical knowledge that was until a
few years ago only in the realm of health professionals
46. In just a few more years, the distant "voice" of doctors as the sound of the medical
profession will seem as contrived and artificial as the language of the 18th
century French court.
47. The recognition of a problem or situation mostly leads to innovations that have greater
positive impact on a society than high-tech health innovations
48. Healthcare organizations that think it’s enough for a healthcare organization to
just be online misunderstand the potential of an optimized mobile
website, for their communication with patients and future patients
49. Health care workers that don't realize that their markets are now networked person-to-
person, getting smarter as a result and deeply joined in conversation are missing
their best opportunity.
50. Mobile internet access is not a mere fad; widespread adoption of mobile
communications means that an investment in mobile development now can set your
healthcare organization apart.
51. Hospital websites that are optimized for smartphone browsers better attract new
52. Hospital websites that are optimized for smartphone browsers boost their patient
53. Co-creation and transparency are key
54. Medical care should be easily accessible at all reasonable hours
55. A patient must able to get in a doctor's advice within 48 hours.
56. Social Media and mobile access are the tools to finally share information between
caregivers and care takers and for (big) pharma; the opportunity and obligation to
communicate with patients and doctors instead of pushing their products
on profit focusing stakeholders.
57. Patients can now access a huge amount of high-quality information that
can be used for self-care and to understand when to seek professional care.
58. Access to information will increase a patient’s ability to affect the course of their
disease and decrease their need to use the established healthcare system.
59. A key point for eHealth is the public access and use of the information about health
(diseases, diagnostic, treatments…), but the huge quantity of information to patients
and general public are difficult to interpret, because of the lack of
60. Through eHeath information, patients have the ability to access, view, monitor and
communicate with the medical community that can have a profound impact on QOL
scores and have a positive healthcare economic impact
61. Medical information on the internet with a proportion of information not applicable to a patient’s specific situation can result in people
believing they are informed when they are not.
62. The internet and eHealth are excellent tools in the hands of healthcare policy makers:
they offer the possibility to quickly adapt to changing scientific and socio-economic
conditions in healthcare
63. Decisions on policies that regulate public health must be submitted to the public, so
that citizens express their opinions freely.
64. The views of citizens on a decision of public health policy must be subjected
65. The Internet is the most suitable means to encourage public participation in
evaluating the decisions of public authorities.
66. With the use of eHealth, SoMe, self-management in Health Care, productivity gain
can reach 1 billion euros
67. eHealth reduces the amount of nurses, doctors, psychiatrists and thus smaller staff
shortages in health care.
68. eHealth limits the growth of health spending: large-scale investment in e-health and
self-management concepts provide significant savings for business and insurances.
69. E-health, telecare and self management are available outside work hours for lower
costs than normal daytime healthcare. Significant productivity gains will be realized.
70. The potential of e-health and self-management is underused.
71. Innovation-Driven Health Care, is health care that develops care in co-creation with
72. One human is different from the other, the physician should see the person in
front of him in connection to any guideline and not vice versa
73. The internet enables communities to form and people within those communities
to communicate. This enables the support of patients by patients, particularly in
certain disease areas like rare diseases where there may not be anyone with the
disease nearby. And enables the interpretation of the wealth of information based
on personal experience so patients can understand the difference between the
information and misinformation (but it can propagate misinformation). These both
help patients to be more informed and better supported, again without using the
established healthcare systems.
74. Smartphones now have more computer power than most medical devices.
75. Smartphones are enabling remote monitoring and investigation. This will change
healthcare by removing the need to visit healthcare centers and enable the
monitoring of a patient’s condition continuously.
76. Smartphones will change the way diseases and their burden on patients are
understood, leading to new treatments and better care.
77. Public Relations does not relate to the public. Healthcare companies are afraid of
communicating with all their patients: happy and unhappy patients
78. Compassion for care is not a parlor trick to pick up.
79. Command-and-control management styles both derive from and reinforce
bureaucracy, power tripping and an overall culture of paranoia.
80. Paranoia kills conversation. That's its point. And lack of open conversation kills
81. Patients have real power and they know it.
82. Patients like this Health 2.0 much better. In fact, the are co-creating it.
83. Patients have got some ideas for you too: some new skills you need, some better
service and lots of new tools for telecare. New stuff that saves time and money.
84. We know some doctors. They're pretty cool online. Do you have any more like them?
You're hiding in hospitals and healthcare institutions? Can they come out and play?
85. When patients have questions they turn to each other for answers. If doctors didn't
have such a tight paradigm maybe they'd be among the people we'd turn to.