Denise Silber's eHealth

Health 2.0 Europe speaker : Ségolène Aymé, OrphaNet

Video interview of Ségolène Aymé, founder of OrphaNet, who has by the way, added Google Translate to its already multilingual pages. Ségolène will be speaking at Health 2.0 Europe April 6 2010, Paris.

Can't imbed this channel  ;-( but you can click here to see the interview on YouTube

http://www.youtube.com/user/eurordis#p/a/u/0/p-bB30q_Yzk

A 2.0 Interview of Miguel Cabrer, MEDTING founder and ex digital hospital CIO

Miguel Cabrer founder of MEDTING, a global site for the exchange of  medical information and images, will be a panelist at Health 2.0 Europe in Paris. Formerly CIO of Hospital Son Llatzer, the first digital hospital in Europe (European Commission eHealth Award in 2004) and eHealth Coordinator for the Balearic Islands Health Department,  Miguel Cabrer is now an independent eHealth Advisor, Member of the HIMSS EMEA Governing Council and Member of the IMIA Web 2.0 taskforce workgroup.  Our Health 2.0 Regional Ambassador to Spain, Miguel even found the time to be interviewed!  

 

Denise says: Please tell us the main reason for a physician to use Medting?  

Miguel says: Physicians use Medting to share a clinical case with a colleague from anywhere in the world.  They also store images and videos, build clinical cases, and access content for research and learning purposes. Content can be restricted to invitees only.  A hospital or other organization can create its own extranet with the Medting Enterprise platform.  

Denise says: How did you get the idea that there was a need for these different functionalities?  Was it something you would have wanted  when you were working in a hospital?  

Health 2.0 Europe - webinar from California, Paris, Naples, Kerry

Web 2.0, BMJ, Braillon, Silber - Act 2

You recall that I learned about a French colleague's unfortunate "sacking" through a Dutch colleague's tweet of an article by a French author in BMJ and wrote about it on this blog and my French blog. This all led to broad 2.0 relaying of the story in France.

Chapter 2 is a somewhat happier story. Braillon and SIlber responded jointly this weekend to an article that Alain Braillon had noticed. And sure enough it was published online the same day and discouvered thanks to  a Google alert received this morning

Our response explained why we think that the FDA should not suddenly be recommending that patients fill in  lists of x-rays taken on a separate form, given the many alternatives for a relatively complete file online, not to mention the "meaningful use" incentive.

In any event, given how fast 2.0 communication is going, what are you waiting for? Isn't there something you need to publish?

Dose of Digital, a truly indispensable wiki and blog in social media for healthcare

 If you're going to a desert island -- with wifi-- and there's access to only one site about social media in pharma, which should you choose ? Without a doubt "doseofdigital.com". DoseOfDigital just celebrated its first birthday on Feb 24 2010. It is amazing to realize how in only one year, this wiki, a combination of well-thought out lists and a submission form, has come to constitue the best source of "who's doing what" in social media. And full credit is given for the submissions. Crowdsourcing the best wiki in town. Very bright indeed. Not to mention that the agency behind the wiki has been voted one of the best places to work in the USA.

Social Media: Fortune 100 study by Burson Marsteller and what it means for you

Are you like a Fortune 100 company, as regards Social Media? Do you have a Twitter, Facebook Fan Page, YouTube and or corporate blog account ? The graph on the left from a Burson Marsteller study enables us to see that Europe behaves like the US in social media. At any rate, the difference is low..The study includes other data about what is being done, frequency, etc.  The study can be downloaded herei Parallel to all of this, there are increasing anecdotal descriptions of what is being done by pharma, hospitals, and other healthcare actors.

 DoseofDigital, the wiki of all wikis inventorying all of this, and in particular the pharmaceutical industry in English is to be commended for its work. Here is the link

So, are you a Fortune 100 company does not allow its managers to access Facebook, YouTube (the 2nd largest search engine after Google)  from the office? A major European pharma company just reversed its policy on that globally allowing managers to access YouTube and Facebook from the office; It's no longer practical to say "no". It's time to figure out the what, why, how of social media.

 

A 2.0 Interview with Berci Mesko, regional ambassador to Hungary for Health 2.0 Europe Paris #health2eu

Dr Bertalan Mesko, or Berci to his friends, is a recently-graduated Hungarian medical doctor, with whom I had the pleasure of blogging about geriatrics at IAGG 2009. Berci was then just beginning his PhD in clinical genomics. He’s also found the time to create Webicina, a web 2.0 guidance service for patients and medical professionals,  continue to be an award-winning blogger, Scienceroll.com,  become an educator for a Medicine and Web 2.0 university credit course and participate in a recent seminar with me. Enjoy the interview below with our  Regional Ambassador extraordinaire to and from Hungary ;-) for Health 2.0 Europe Paris        http://www.health2con.com/paris2010,

Denise Silber  How did you get interested in 2.0 tools for physicians?  
Berci Mesko Ves Dimov, MD from Clinical Cases and Images (http://casesblog.blogspot.com) sent me his slideshow  in 2006 and the idea of facilitating the workflow of physicians through social media amazed me. On http://Scienceroll.com I started to write about interesting applications and tools doctors and patients can use day by day either in a medical practice or in health management. Later my blog won some blog awards and had plenty of new readers so I thought I should keep on working and informing the public about the potential role of web 2.0 in the future of medicine and healthcare. Through my blog, I’ve received many invitations to speak about these issues at international conferences. All the things I’ve ever done and experienced online resulted in a health 2.0 site called http://Webicina.com.
 

Is TrialReach.com the new Google of the segment?

 Question : Which online clinical trial repository will French internet users consult?    Reply : Those which are the most Search Engine optimized and the most ergonomic. There is always room for a new player who does both well, hence the title of this post equally available in French on DeniseSilber.com.

The purpose of the original post was to demonstrate that competition for traffic is international in this seglment.

Born in the UK, just across La Manche / the Channel ;-), the site TrialReach.com has an impeccable internal search function that enables the user to enter successive critria and manage its personal data.  The home page is Web 2.0 / Googlish clean. And it seems easy to get around.

Is the data base complete ? Possibly too soon to say, but there are nearly 90K trials listed.

Last night, when I wrote the French post, the Afssaps or French medicine agency's data base was inaccessible. Is it ergonomic. That's another question... https://icrepec.afssaps.fr/

And of course there are other major options for internet users.

a) ClinicalTrialsSearch.org lets you look for sites in France

http://www.clinicaltrialssearch.org/france_clinical_trials.html

b) So does the US government 

ClinicalTrials.gov

http://clinicaltrials.gov/ct2/results?cntry1=EU%3AFR

Cancer.gov

http://www.cancer.gov/clinicaltrials/search

c)  The IFPMA provides a French interface as well as other languages

http://clinicaltrials.ifpma.org/no_cache/fr/monportail/index.htm

d) Let's not forget OrphaNet and its annuaire d'essais cliniques for rare disease (in multiple languages)

So, online publishers beware. There is a competition for traffic to clinical trials even in your home country, since users will find international sites with large data bases even before the national ones. Welcome to the web, TrialReach.com We'll be following you.

signed Denise or @health20paris

Health on the Net Foundation goes Web 2.0 / Interview with Celia Boyer

The subject of the quality of healthcare information on the Internet is rich and recurring. The main question we hear regularly is whether or not Internet users are finding quality health information. But it’s not the only one. There is also: how governments can/should protect citizens? And more recently, do Web 2.0 tools give users more power or make them more exposed to poor quality information?

This article focuses on Health on the Net. Established in 1995 in Geneva Switzerland, HON is the longest running, most widespread code of conduct dedicated to health and the Internet.

 HON will release its next Web 2.0 tool during the Health 2.0 Europe Conference, Paris April 6-7, 2010 !

(Video) Health 2.0 Europe speaker : Denise Silber, Basil Strategies

Catch a glimpse of me below, being interviewed in San Francisco, before we had even mapped out the full program at Health 2.0 Europe Paris.

And if you continue on to view some of the other videos of our speakers, you will realize that the diversity of Europe, the linguistic, cultural, and regulatory differences are in fact a source of tremendous creativity. Amazing things are going on in Health 2.0 in Europe.

And why you don't know about them?
a) because of the language barrier.

b) according to my quick survey ;-); web site founders outside of the US are so far  less likely to post videos of themselves than are us Americans, no matter where we live...But that will change.

So, there will be a big "before and after" at Health 2.0 Europe, as national stars become international stars!