Internet et les maladies chroniques (Pew Foundation) : mieux vaut être riche et en bonne santé que ...

Selon la  nouvelle étude réalisée par entretiens téléphoniques et signée par  Susannah Fox de la Fondation Pew, les personnes atteintes de maladies chroniques consultent moins internet que les personnes en bonne santé, non pas par manque d'intérêt, mais parce qu'elles n'ont pas nécessairement de connexion internet.autr  Ces personnes ont un double souci -- d'être malades et de ne pas bénéficier du soutien des autres internautes.

Susannah Fox sera à Paris pour la conférence Santé 2.0 Europe où elle va commenter le panel de patients européens à la lumière de son expérience américaine.

Rappelons que le coût de la connexion à l'ADSL est plus élevé aux Etats-Unis et qu'il n'existe pas de packages bon marché incorporant téléphone et télévision cablée.

Toujours selon Susannah, les maladies chroniques aux Etats-Unis sont associées à un profile de personne plus âgée, moins éduquée, moins prospère que les personnes non-atteintes de maladie chronique. Téléchargez l'étude :  l'étudeTéléchargement PIP_Chronic_Disease

Comments

[Rédigé par : Reynald Fleury]

Thank you!

How do you believe an age-adjusted comparison would affect these percentages and the meaning of this disparity?

You’ve done a great job. I simply have difficulties to catch your assumptions made through the 35 pages of your report.

RF

[Rédigé par : SusannahFox]

I forgot to address your question: 62% vs. 81% is not age-adjusted, although I like your idea to do that analysis.

One other thing to note about my organization - we support open science and open research. We upload our full data sets to our site after we've completed our own analysis so that other people can dig in for themselves. Although we plan to release more reports based on this data set (December 2008) we will upload it - crosstabs and SPSS files - within the next two weeks. My colleague Kristen Purcell will also post our methods "cook book" so other researchers can pick up where we left off.

Truly, I know we don't have all the answers, just the power to ask questions and point people in (hopefully) the right direction, thanks to the funding provided by the Pew Charitable Trusts and the California HealthCare Foundation.

[Rédigé par : SusannahFox]

Thanks for the reply - I welcome questions about our research and very much appreciate being able to answer in English (c'etait plusieurs annees que je parlais francais!).

If you read the full 30+ page report on pewinternet.org, including the methodology section, and you still think it lacked rigor than hat's off, you have high standards! The Pew Research Center strives to do academic-quality but publicly-accessible research, producing insights to inform the public conversation about important issues -- such as the impact of the internet on health & health care. I recognize the limitations of our primary method (phone surveys) but until we find another way to effectively measure a changing population, we'll persist in using the tools that work.

I invite you to join the conversation on e-patients.net where I also wrote about how data + narrative can be woven together to portray a group:
http://bit.ly/a1VPBx

Maybe I will see you in Paris & we can chat in person?

[Rédigé par : Reynald Fleury]

You speak very well French!

Could I have missed something from the full story on your web? I am still not convinced by how you took into account study hypotheses, sources of potential bias or imprecision and the dangers associated with multiplicity of analyses and outcomes.

The report states “People living with chronic disease are likely to be advanced in age”. Therefore, I wonder if the 62% vs. 81% are age adjusted or not.

With kind regards

Reynald Fleury