Health 2.0 Europe - European governments are moving ahead (report on the keynote session Fr, NL, DK) #health2eu

Is a keynote speech necessarily the highpoint of the conference for the audience? When the speaker is an international celebrity, if nothing else, the audience will have had the pleasure of seeing the speaker in person. But in healthcare where there are few global celebrities, the keynotes can be just as boring as elsewhere. Not so at Health 2.0 Europe, where you could hear a pin drop during the session.

As the organizer, I of course felt that we were proposing an exciting selection  with  Etienne Caniard from France, Pieter Vos of the Netherlands, and Morten E Petersen of Denmark. We would be taking the audience on a journey from a country that is just starting to recognize the important of Health 2.0, France, to the Netherlands that has finished a public consultation on the subject and even translated its report to English so that others can benefit from it around the world, and finally to one, Denmark, whose citizens can already access their electronic health record and exchange on a national portal, without knowing about the 2.0 movement.

However, I didn't realize just how well the chemistry would work amongst the speakers who had not previously appeared together....Read on for analysis, testimonials, slides the DUTCH REPORT on HEALTH 2.0 in English, and what is happening in the state of Denmark !

Health 2.0 Europe : post-conference coverage #health2eu (articles are still coming!)

We are now 3+ weeks after the Health 2.0 Europe conference, and it is safe to say that this is the first event in our subject area, to still be generating articles and blog posts. Coverage is more from  speakers and "e" enthusiasts than from  traditional journalists, although we must salute the many journalists who have published stories on the conference. (Destination Santé, Hospimedia, Quotidien du Médecin have each done 2 articles). See http://www.denisesilber.com for the articles in French.

Picture by Supergelule.

Coverage began with @andrewspong providing the Tweet Archive

Téléchargement #health2eu_tweet_archive_final

Click for 12 articles in English, 1 in Dutch, 1 in German

Health 2.0 Europe - more presentations to download - #Health2eu

The Health 2.0 Europe conference is primarily composed of demos. But, there were a few great presentations. You've already seen the introductory slideshow. Here is what followed. Please click for more.

Health 2.0 Europe - Introductory slides #health2eu

Please find below the opening slides from the Health 2.0 Europe conference. This introduction, presented by the 3 of us, Matthew Holt @boltyboy, Indu Subaiya @bluetopaz, Denise Silber @health20paris, illustrates the comparative contexts of the US and Europe, regarding Health 2.0.

Health 2 0 Europe Presentation

Health 2.0 Europe on Huffington Post via @rzeiger #health2eu

  Thanks @susannahfox for pointing out Roni Zeiger's essay crossposted on e-Patients and Huffington Post. The text concerns a comment Roni, Chief Health Strategist at Google, made during the Health 2.0 Europe conference. The comment itself wove together conversations from two of the panels: patient communities and tools. The takeaway which should bring us all to agreement is that while data is increasingly easier to collect, it is only useful if it leads to conversations that ultimately facilitate better and more satisfying  shared decision-making.  Click on the image to read the whole post.

#health2eu a Wordle visualization

A Wordle visualization of #health2eu thanks to @tiphainemf

Health 2.0 Europe Paris: Denise's takeaway messages Part 1 #health2eu

Whether you attended the Health 2.0 Europe conference in Paris or not, if you're interested in the movement, whatever the name you use for it, you've been waiting to hear the results of the conference. In this first article, we'll look at  the takeaway messages. What did people learn? Well, this very much depends on what they knew going in. But we'll take a stab at answering nonetheless. Click for the important takeaways that the program could provoke. And come back soon for the next blogpost, where we'll work our way through the agenda. 

Dutch video on Health 2.0 "it's up to you" produced by RVZ, independent council #health2eu

At the Health 2.0 Europe conference keynote session, Pieter Vos presented the report on Health 2.0 prepared for the Dutch Ministry of Health by the RVZ, independent council. The report will soon be available in English and we'll help make it known. Self-management is an important term in the report. It also speaks of "healthcare consumers" and all they can do thanks to the Internet (online communities, consultations, PHR) and as well that the government must examine its policies to see how they can be improved. This may be the first such report and video from a public body.

#health2eu Europe photos

 Photos of Health 2.0 Europe, by Lisette Van Hoof of the Netherlands:   Click for more photos. Cité Universitaire. Prepping. Participants. 

 Photos of Health 2.0 Europe, by Lisette Van Hoof of the Netherlands:   Click for more photos. Cité Universitaire. Prepping. Participants. 

#health2eu Health 2.0 Europe introductory video

#health2eu Health 2.0 Europe intro video from Denise Silber on Vimeo.

2001 Lancet article interview with Mark Bard, Denise Silber foresaw today's Health 2.0 sector

In preparing my notes for the Health 2.0 Europe conference in Paris April 6,7, I came across a 2001 article in which Marilyn Larkin interviewed Mark Bard and myself.

The article was written just after the crash of the first internet bubble.

If you read Mark Bard's and my comments, you will see that we both spoke of a second stage, where web sites woud go beyond content to practical applications

We were in fact predicting the arrival of Health 2.0

I in particular spoke of the "rise and fall and rise" of the internet health sector.

OK, so I wasn't expecting it would take 9 years to reach the level of interest we see today...But as they say in French, when you love, who's counting?

PS I'm sorry I'm printing this article from Lancet...But it is 9 years later...and for a good cause!  Téléchargement Silberlancet-page

New Pew Foundation Report confirms the double whammy of the chronically ill

According to the latest study by Susannah Fox of Pew, those with chronic disease in the US are less likely to use the internet for their health care needs, simply because they are less likely to have an itnernet connection.These people have the double problem of being ill and not having access to the internet.  

Susannah Fox will be in Paris for the Health 2.0 Europe conference, where she will comment on the patient panel featuring European patients.

Remember that a broadband internet connexion in France of around 30 euros a month provides unlimited internet connexion, unlimited long distance, and cable TV.

In the US, chronic disease is associated with the profile of an older, more education, more prosperous person than someone with chronic disease. To download the study :  l'étudeTéléchargement PIP_Chronic_Disease

A 2.0 Interview of Chris Flim, our Health 2.0 Ambassador to the Netherlands

 We interviewed Chris Flim, our Health 2.0 Europe Ambassador to the Netherlands, in Barcelona during eHealthWeek. He's looking forward to attending Health 2.0 Europe and, if you listen to the brief video, you will learn one important thing about the Netherlands and Health 2.0 which will make you proud to be Dutch and probably jealous if you are not.

Health 2.0 Europe's Denise Silber interviews Chris Flim Netherlands from Denise Silber on Vimeo.

Health 2.0 Europe speaker : Ségolène Aymé, OrphaNet

Video interview of Ségolène Aymé, founder of OrphaNet, who has by the way, added Google Translate to its already multilingual pages. Ségolène will be speaking at Health 2.0 Europe April 6 2010, Paris.

Can't imbed this channel  ;-( but you can click here to see the interview on YouTube

http://www.youtube.com/user/eurordis#p/a/u/0/p-bB30q_Yzk

A 2.0 Interview of Miguel Cabrer, MEDTING founder and ex digital hospital CIO

Miguel Cabrer founder of MEDTING, a global site for the exchange of  medical information and images, will be a panelist at Health 2.0 Europe in Paris. Formerly CIO of Hospital Son Llatzer, the first digital hospital in Europe (European Commission eHealth Award in 2004) and eHealth Coordinator for the Balearic Islands Health Department,  Miguel Cabrer is now an independent eHealth Advisor, Member of the HIMSS EMEA Governing Council and Member of the IMIA Web 2.0 taskforce workgroup.  Our Health 2.0 Regional Ambassador to Spain, Miguel even found the time to be interviewed!  

 

Denise says: Please tell us the main reason for a physician to use Medting?  

Miguel says: Physicians use Medting to share a clinical case with a colleague from anywhere in the world.  They also store images and videos, build clinical cases, and access content for research and learning purposes. Content can be restricted to invitees only.  A hospital or other organization can create its own extranet with the Medting Enterprise platform.  

Denise says: How did you get the idea that there was a need for these different functionalities?  Was it something you would have wanted  when you were working in a hospital?  

Health 2.0 Europe - webinar from California, Paris, Naples, Kerry

Web 2.0, BMJ, Braillon, Silber - Act 2

You recall that I learned about a French colleague's unfortunate "sacking" through a Dutch colleague's tweet of an article by a French author in BMJ and wrote about it on this blog and my French blog. This all led to broad 2.0 relaying of the story in France.

Chapter 2 is a somewhat happier story. Braillon and SIlber responded jointly this weekend to an article that Alain Braillon had noticed. And sure enough it was published online the same day and discouvered thanks to  a Google alert received this morning

Our response explained why we think that the FDA should not suddenly be recommending that patients fill in  lists of x-rays taken on a separate form, given the many alternatives for a relatively complete file online, not to mention the "meaningful use" incentive.

In any event, given how fast 2.0 communication is going, what are you waiting for? Isn't there something you need to publish?

Dose of Digital, a truly indispensable wiki and blog in social media for healthcare

 If you're going to a desert island -- with wifi-- and there's access to only one site about social media in pharma, which should you choose ? Without a doubt "doseofdigital.com". DoseOfDigital just celebrated its first birthday on Feb 24 2010. It is amazing to realize how in only one year, this wiki, a combination of well-thought out lists and a submission form, has come to constitue the best source of "who's doing what" in social media. And full credit is given for the submissions. Crowdsourcing the best wiki in town. Very bright indeed. Not to mention that the agency behind the wiki has been voted one of the best places to work in the USA.

Social Media: Fortune 100 study by Burson Marsteller and what it means for you

Are you like a Fortune 100 company, as regards Social Media? Do you have a Twitter, Facebook Fan Page, YouTube and or corporate blog account ? The graph on the left from a Burson Marsteller study enables us to see that Europe behaves like the US in social media. At any rate, the difference is low..The study includes other data about what is being done, frequency, etc.  The study can be downloaded herei Parallel to all of this, there are increasing anecdotal descriptions of what is being done by pharma, hospitals, and other healthcare actors.

 DoseofDigital, the wiki of all wikis inventorying all of this, and in particular the pharmaceutical industry in English is to be commended for its work. Here is the link

So, are you a Fortune 100 company does not allow its managers to access Facebook, YouTube (the 2nd largest search engine after Google)  from the office? A major European pharma company just reversed its policy on that globally allowing managers to access YouTube and Facebook from the office; It's no longer practical to say "no". It's time to figure out the what, why, how of social media.

 

A 2.0 Interview with Berci Mesko, regional ambassador to Hungary for Health 2.0 Europe Paris #health2eu

Dr Bertalan Mesko, or Berci to his friends, is a recently-graduated Hungarian medical doctor, with whom I had the pleasure of blogging about geriatrics at IAGG 2009. Berci was then just beginning his PhD in clinical genomics. He’s also found the time to create Webicina, a web 2.0 guidance service for patients and medical professionals,  continue to be an award-winning blogger, Scienceroll.com,  become an educator for a Medicine and Web 2.0 university credit course and participate in a recent seminar with me. Enjoy the interview below with our  Regional Ambassador extraordinaire to and from Hungary ;-) for Health 2.0 Europe Paris        http://www.health2con.com/paris2010,

Denise Silber  How did you get interested in 2.0 tools for physicians?  
Berci Mesko Ves Dimov, MD from Clinical Cases and Images (http://casesblog.blogspot.com) sent me his slideshow  in 2006 and the idea of facilitating the workflow of physicians through social media amazed me. On http://Scienceroll.com I started to write about interesting applications and tools doctors and patients can use day by day either in a medical practice or in health management. Later my blog won some blog awards and had plenty of new readers so I thought I should keep on working and informing the public about the potential role of web 2.0 in the future of medicine and healthcare. Through my blog, I’ve received many invitations to speak about these issues at international conferences. All the things I’ve ever done and experienced online resulted in a health 2.0 site called http://Webicina.com.
 

Is TrialReach.com the new Google of the segment?

 Question : Which online clinical trial repository will French internet users consult?    Reply : Those which are the most Search Engine optimized and the most ergonomic. There is always room for a new player who does both well, hence the title of this post equally available in French on DeniseSilber.com.

The purpose of the original post was to demonstrate that competition for traffic is international in this seglment.

Born in the UK, just across La Manche / the Channel ;-), the site TrialReach.com has an impeccable internal search function that enables the user to enter successive critria and manage its personal data.  The home page is Web 2.0 / Googlish clean. And it seems easy to get around.

Is the data base complete ? Possibly too soon to say, but there are nearly 90K trials listed.

Last night, when I wrote the French post, the Afssaps or French medicine agency's data base was inaccessible. Is it ergonomic. That's another question... https://icrepec.afssaps.fr/

And of course there are other major options for internet users.

a) ClinicalTrialsSearch.org lets you look for sites in France

http://www.clinicaltrialssearch.org/france_clinical_trials.html

b) So does the US government 

ClinicalTrials.gov

http://clinicaltrials.gov/ct2/results?cntry1=EU%3AFR

Cancer.gov

http://www.cancer.gov/clinicaltrials/search

c)  The IFPMA provides a French interface as well as other languages

http://clinicaltrials.ifpma.org/no_cache/fr/monportail/index.htm

d) Let's not forget OrphaNet and its annuaire d'essais cliniques for rare disease (in multiple languages)

So, online publishers beware. There is a competition for traffic to clinical trials even in your home country, since users will find international sites with large data bases even before the national ones. Welcome to the web, TrialReach.com We'll be following you.

signed Denise or @health20paris

Health on the Net Foundation goes Web 2.0 / Interview with Celia Boyer

The subject of the quality of healthcare information on the Internet is rich and recurring. The main question we hear regularly is whether or not Internet users are finding quality health information. But it’s not the only one. There is also: how governments can/should protect citizens? And more recently, do Web 2.0 tools give users more power or make them more exposed to poor quality information?

This article focuses on Health on the Net. Established in 1995 in Geneva Switzerland, HON is the longest running, most widespread code of conduct dedicated to health and the Internet.

 HON will release its next Web 2.0 tool during the Health 2.0 Europe Conference, Paris April 6-7, 2010 !

(Video) Health 2.0 Europe speaker : Denise Silber, Basil Strategies

Catch a glimpse of me below, being interviewed in San Francisco, before we had even mapped out the full program at Health 2.0 Europe Paris.

And if you continue on to view some of the other videos of our speakers, you will realize that the diversity of Europe, the linguistic, cultural, and regulatory differences are in fact a source of tremendous creativity. Amazing things are going on in Health 2.0 in Europe.

And why you don't know about them?
a) because of the language barrier.

b) according to my quick survey ;-); web site founders outside of the US are so far  less likely to post videos of themselves than are us Americans, no matter where we live...But that will change.

So, there will be a big "before and after" at Health 2.0 Europe, as national stars become international stars!

(video) Health 2.0 Europe speaker : Mohammad Al Ubaydli Patients Know Best

Catch Dr Mohammad Al Ubaydli speaking about electronic health records. Meet him in person at Health 2.0 Europe.

Improving patient care with the EPR - Mohammad Al-Ubaydli from Mohammad Al-Ubaydli on Vimeo.

(video) Health 2.0 Europe speaker : Gilles Frydman, ACOR

Catch a glimpse of GIlles Frydman whom you'll get to meet in person at Health 2.0 Europe.

(video) Health 2.0 Europe speaker : Christian Angele, Imedeo.de

Catch a glimpse of Health 2.0 Europe speaker Christian Angele. The interview here is in German. But you'll get to speak with him in English about Imedeo, his exciting online community

(video) Health 2.0 Europe speaker : Jean-Louis La Porte, Tribu Cancer

Catch an interview (in French) with Jean-Louis Laporte, TribuCancer, patient association, who will speak at Health 2.0 Europe

(video) Health 2.0 Europe speaker : Celia Boyer, HON

Catch a glimpse (in French) of Celia Boyer, HON, who will be speaking in English at Health 2.0 Europe

(video) Health 2.0 Europe speaker : Etienne Caniard, Haute Autorité de Santé

Catch a glimpse (in French) of Health 2.0 Europe speaker, Etienne Caniard.
Label HON pour les sites santé
envoyé par dailyglub. - Vidéos des dernières découvertes scientifiques.

(video) Health 2.0 Europe speaker : Susannah Fox

Preview speaker Susannah Fox, whom you'll get to meet in person at Health 2.0 Europe, Paris April 6-7.

(video) Health 2.0 Europe speaker : Ben Heywood, PatientsLikeMe.com

Preview some of the speakers you'll meet in person at Health 2.0 Europe. Here briefly is Ben Heywood, PatientsLikeMe

(video) Health 2.0 Europe speaker : Steven Krein, Organized Wisdom

Rating or Narrating, that is the question : how best to relate the patient experience

This April 6–7, the Health 2.0 Europe conference will feature the many ways in which Web 2.0 tools are providing innovative solutions to, amongst others, our fundamental need for self-expression, known more recently as “user-generated content”.

Several panels will refer to these issues, but we will focus in this post on the Hospital and Payers’ panel. Payers want to ensure that their patients are being oriented to good care. Hospitals want to know that they are being considered “justly”. The Health 2.0 panel will include demonstrations by Guide Santé (France) and Patient Opinion (UK), both web 2.0 sites created by physicians concerned by patient satisfaction with hospitals and clinics. Payers like the UK NHS and Big-Direkt from Germany will participate in the conversation and Big-Direkt will also demo their new online tools.

Rating sites in health are high profile in France, especially amongst those who are rated and some early entrants have bit the dust for methodological reasons. Rating sites, however are not all identical and they are certainly not alone in capturing the patient experience. They live alongside online story telling or narrative tools, deployed in a variety of ways on sites that will be featured in Paris from a dozen countries.

How did all of this come about?

Twitter, BMJ, @zorg20, and me @health20paris

What does the title of this post mean? Well,that it's a small world and that Twitter is of course shrinking time and space. Thanks to a retweet by my Dutch colleague Lucien Engelen,   @zorg20   of a BMJ post, I learned that Alain Braillon, whom we appreciate,  amongst others, for his newsletter on the quality of care and the elegance with which he manages it, always clearly citing his sources -- which is rare, despite the recommendations of the HONCode to cite your sources-- lost his job at the Amiens teaching hospital. Various reasons for this dismissal are suggested in the article by Paul Benkimoun. The author's gamble that a BMJ post would create a public dialogue has led to this first post and possibly others. The French medical news Panorama also reported the story.

Sermoblog or Sermo Blog? Can an anonymous critic represent physician transparency?

Are you interested in how to run an online physician community? Many people are. That is why the subject will be treated at Health 2.0 Europe. The panel will be segmented in two parts: international physician communities and national physician communities. One American community will be present, Sermo represented by Daniel Palestrant. SInce I'll be moderating that panel, I was intrigued by a post on Sermo blog, self-described as "keeping an eye on physicians' social media. "Today's article is entitled: what makes a physician forum work, part 1? The post was tweeted around today, amongst others by @Gaborgy who manages a physician community in Hungary.

PHR's : 1 up, 1 down -- Microsoft HealthVault, Revolution

So, it's a big week in PHR-land.

• Revolution Health stops theirs for lack of users.
• Obama doesn't mention health IT in his State of the Union address.
• Microsoft Health Vault goes off to test European waters via Siemens in Germany.

Good thing the weekend is almost upon us...But that doesn't mean the news will stop. On the contrary, with all the tweeters, bloggers, etc, we're all having to tweet and blog, faster and faster to keep our platforms current.

Who can predict the physionomy of the PHR market? All I can say, is that it is sure to be hybrid. No big new national programs that ultimately bite the dust, despite Denmark's success. Long live innovation...We're waiting for the breakthrough and if we don't continue to innovate, phr's will remain imperfect for quite some time.

Microsoft HealthVault to launch in Belgium?

While  the definition of "meaningful use" is occupying some of the finest minds in official EMR-land in the US, things are also moving in Belgium, and Microsoft HealthVault may be approaching roll-out, according to the Francophone website of a patient association. The site reports that patients must partake in the pending debate on this subject. Here is the link to the  article in French by the president of the association.  And an extract from the article:

"Even though all of this seems to contribute to the centralization of medical data by the patient, who is the only one to decide to share the data with the entity of his or her choice, Microsoft HealthVault could represent a danger for Belgian patients. ... We think we should participate in the debates concerning Microsoft HealthVault to preserve the freedom of choice for patients (freedom to change vendors, suppliers, health management system...). Let us hope that Microsoft will guarantee the associations the right to follow the studies that may one day enable Microsoft to participate in the improvement in our country of the transmission of objective non commercial information about patients and their providers.

 Lucio Scanu

Personal health records are indeed progressing in many ways, shapes, and forms, in parallel to physician-initiated electronic medical record systems. Public and private organizations are venturing in many interesting directions.   Personal health records in Europe will be demoed and discussed with representatives from several significant initiatives from the US, UK, France, Netherlands at Health 2.0 Europe, Paris, April 6-7, 2010.Should you be attending, exhibiting, covering the conference? Contact me.

Terminology : EHR, EMR, PHR

Electronic health record, electronic medical record, personal health record -- We decided to see how frequent the use of the term has been over the past 50 years, with an advanced Google timeline search.

  

 

Communicate (animated film on you, your health, and the internet)

Independent evaluation of web sites of French hospitals and clinics

How good are the web sites of French hospitals and clinics? Which web sites should be studied? Which criteria should be included in the review, with what methodology?

Well, the short answer to the long question is that Denise SIlber convinced Basil Strategies ;-) to study the web sites of what are reportedly amongst the best hospitals and clinics in France. The conclusions of the Basil Study are that these institutions are clearly not perceiving the benefit to their organization in maintaining an attractive, up to date site that answers most of the basic questions, recruits new employees, and actually saves its institution time and money. The average score was 50 out of 100, with no major difference between public, private, and not for profit, although the best one seemed to be public and the worst, private.

More on the study soon!