Quantified Self, Connected Objects, Crowdfunding, Kickstarter, Intelligent Fork #doctors20 #eatingslowly

 

"Digital" gets lots of attention for sure. But one underplayed impact of digital is the new vocabulary it generates. Quantified Self refers to self-measurement by individuals interested in understanding the data our body produces. Quantified Self goes along well with connected objects. The connection between the objects is digital of course; the objects are connected to the web to transport the data. An example is the intelligent fork, invented by Jacques Lepine of SlowControl.com -- the fork that knows when we eat too fast (HAPIfork)

Next along comes crowdfunding, a second generation method for getting financed, thanks to the wisdom of the masses. It's also CGU but the "c" is for contribution generated by the user ;-), if I may. Since many of these connected objects come from start-ups, some financing model has to be found. Kickstarter is a leader in the area of crowdfunding, and so it was normal that the intelligent fork would benefit from this great platform for a campaign running through May 31.

And then one week later, the intelligent fork will be present at Doctors 2.0 & You, June 6-7 in Paris, which is one of the reasons why I'm posting this information. Jacques Lepine and Fabrice Boutain travel the world, but they'll be together in Paris. So, if you can't see them in the US or Asia, try to make it to Paris, the world's conference center. We'll be waiting there for you. And that's not virtual.

 

 

 

Doctors 2.0 & You with Kathi Apostolidis

Doctors 2.0 & You Paris June 6-7, 2013 | Infographics

The Story of the Single Tweet that Cured #doctors20

It took:  Lucien Engelen, Berci Mesko, Larry Chu, Sean Ahrens, Roberto Ascione, myself Denise Silber, and first and foremost the patient herself, but one single tweet did change a life and remarkably so!

Here is the story.

In the fall of 2010, someone in the United States, whom I didn't know of or meet until recently, suddenly developed an inflammatory bowel disease, colitis. Her life was turned upside down as she dealt with this new medical problem that was constantly present. She asked her physician if any food allergy could explain her problem. He said no. And so the colitis went on.

In the fall of 2010, I went to Maastricht in the Netherlands to attend Lucien Engelen and Gunther Eysenbach's Medicine 2.0. There, Dr Larry Chu from Stanford was scouting for speakers for Medicine 2.0 2011 in Palo Alto. Berci Mesko spoke to him about me. (You can see that Berci and Lucien know each other and also enjoyed Paris's Doctors 2.0 & You).

And so in September 2011, off I flew to San Francisco, on my way to Palo Alto for Medicine X.  Larry Chu and I quickly realized that our two events, Medicine X and Doctors 2.0 & You, were based on the same philosophy and would be natural partners. 

Denise Silber, Larry Chu

 

Also attending  Medicine X was Sean Ahrens, founder of the Crohnology community. We had a great chat. After the conference, Larry and his team produced a beautiful video interview of Sean, interesting for both its substance and the style.

Back in Paris to prepare for Doctors 2.0 & You 2012, a new partnership came up, with the brand new video platform, Videum that facilitates translation automatically and by volunteers. We chose the Sean Ahren's interview to open the plenary and project it off of Videum for the subtitles. When the video came on in Paris, Roberto Ascione of Razorfish (then Publicis), father of the platform, tweeted the Videum link. 

 

One of Roberto's twitterfollowers from Razorfish was the colitis patient. She saw the link, watched the film, and discovered that a gluten allergy could  indeed explain her symptoms. Two weeks later, she was back to normal!  I did not know the person with "the story", until we met recently, 7 months after the conference to talk about Doctors 2.0 & You 2013. When I described how the conference in 2012 had opened with a video on Videum, she said, "Oh, I have a story to tell you about that video, that "cured me" And so I learned how one tweet had changed a life for the better, with all due thanks to Lucien, Berci, Larry, Sean, Roberto, and, well, me and the patient.

 

Meet up with ePatient AfternoonNapper in Paris at Doctors 2.0 & You (video)

Do you know Sarah Kucharski, AKA @afternoonnapper ? If you venture out into the world of healthcare social media, be sure to look for her...Sarah is a woman on a mission, to accomplish as much as possible, in terms of improving the patient experience and to help the FMD (fibromuscular dystrophy) cause. She took some of her precious time in Paris, while at Doctors 2.0 & You to talk to the camera lens, skillfully managed by @misslondres, Muriel ! The result is simple and elegant. Have a look.

TIanTian Li, founder DXY.com presents this several million member online HCP community in China.

Awesome Tiantian Li, Awesome China, Awesome iPhone..That was what we all thought at Doctors 2.0 & You as we listened to DXY.com's founder.

So, do you too want to hear all about one of China's largest physican social networks and maybe you just can't pop off to China right now? ...Listen to the founder of this several million member community. And wait for the exciting twist starting at around 8'55"...

Pat Rich explains how Not to launch an Online Doctors Community #hcsmca #doctors20 #socmed

Every week we hear about yet another eHealth wonder...But, how often do people have the courage to learn from failure and to talk about it so that they can help others learn as well? Hat's off to Pat Rich from the Canadian Medical Association, who came to Paris to do just that at Doctors 2.0 & You 2012. Listen as he explains what went wrong with the physicians' community they called Asclepios (?) Asklepios (?) ...If they can't spell it, it can't succeed!

Video Postcard from Doctors 2.0 & You #doctors20 #FMDAware

So what's a video post card? It's what we have the great fortune to communicate to you thanks to the talent of @MissLondres. It's not Flick'r. It's not Instagram, but a YouTube 3'48" moment with Sarah Kucharski, Kathi Apostolidis, Berci Mesko, Jacques Lucas, Franck Schneider, Jorge Juan Fernandez Garcia, and myself.  It's in 4 languages, one after the other, no subtitles! It's the fun we have behind the scenes at Doctors 2.0 & You. And oh yes, congratulations to Sarah Kucharski on her birthday and on the launch of #FMDAware

Doctors Inventing Social Media Apps to help make life better for Patients AKA Jennifer Dyer

Okay, I was supposed to wait until we got the new speaker page up on the Doctors 2.0 & You web site -- but I just saw Jennifer's Tweet go by and we're so excited to announce that Dr Jennifer Dyer, @EndoGoddess is going to be speaking in Paris in the spring, May 23-24, 2012. And here she is today on NBC TV from Columbus, Ohio, where she is mostly! And she is talking about what she talks about mostly: trying to make things just a bit better for patients. It's an amazing app that is for diabetes and it's social.

Good luck, Jennifer! We're counting on you here in Paris to draw the conversation together about doctors and patients collaborating, on diabetes and measurement, thanks to social media, mobile apps, iTunes and motivation. Did I get it all?

 

2.6 Social Media Accounts per Engaged US Hospital #hcsm #hcsmeu

A good number of hospital social media and communications people follow "Found in Cache," whose author Ed Bennett (@edbennett on Twitter) is a health care social media blogger who has been painstakingly following hospital use of social media on major platforms such as Facebook, YouTube, Twitter, LinkedIn and blogs. Thank you Ed! I also like your pedagogy in response to those asking about social media's ROI:"What is the ROI of my red plaid pants?" asks Ed,"since I can't go to work without pants." Anyway, regarding statistics, I decided to make a numbers chart out of Ed Bennett's latest bar charts, and play with the figures, in order to provide my analysis.

 

1) Facebook has clearly affirmed its lead in 2011, with Twitter coming in second and YouTube third. So, if a hospital is only planning on managing one account, Facebook would seem to be the one to choose at present.

2) If YouTube is lagging to Twitter, the practical difficulty of producing videos versus producing tweets is undoubtedly the reason here.

3) LinkedIn is gaining popularity quickly and at 566 could overtake YouTube's 575 in 2012, despite the fact that YouTube is third most popular site in the world.

4) The increase in number of hospitals adopting social media is slowing, from 200% to 140%...Hmmm, will end 2012 see only 15 or 1600 hospitals? Could be.

5) And finally, for the past two years running hospitals are averaging 2.6 accounts each, Facebook and Twitter, being the most frequent couple.

 

The Physician-Patient Partnership, an interview with Catherine Cerisey

For today, Silber's blog presents Catherine Cerisey, a French patient advocate and author of her blog "after my breast cancer", « après mon cancer du sein ». Since we launched the health 2.0 chapter meetings, community, and blog in France, Catherine has been present  IRL and virtually via Twitter and tweet-ups #health20fr  #hcsmeufr #doctors20. This June, Catherine Cerisey participated in the French-language Doctors 2.0 workshop about patient expectations.

Catherine and I had a rich exchange recently about the rôle of patients and I want to share with you her insights on "patient partner". Have as a well a look at this brief video animation called "Communicate" about the before and after of the Internet and its impact on the physician-patient relationship.

And here is the interview with Catherine.

Denise Silber : What is your perspective on the cancer patient's rôle? What has the Internet changed?  

Catherine Cerisey :   In a chronic disease such as cancer, in my observation, the patient has always known when and here it hurts, which drug brings relief, where the nurse can inject with the least pain;  it is often the patient who sounds the alert of an abnormal pain that may lead to a series of tests, for example.

How interconnected are we?

At Doctors 2.0 & You, the "& You" referred  to the fact that the health care system is (or should be) a very, if not fully, interconnected world. However, this is still a work in progress. To connect  people within their own country, as most health care is still local, is already a challenge and to go beyond national borders presents an even greater challenge given language and travel requirements. Personal and collective resources both play a rôle. The advent of healthcare social media will help accelerate the connection, where basic resources are available. But much more needs to and will be done!

However, the international language, despite  the improvement of automatic translation tools, tends to be English (or globish ;-) and, given as well, the early start that the US had both on the internet  and in the demonstration of the need for eHealth, many of the most-known protagonists, whether patients, physicians, start-ups have tended to be based in the US while much is happening around the world. We can salute to this end, the hashtags developed by @andrewspong and @whydotpharma in the  #hcsm... series.

Nonetheless, Sermo is still often cited as "the" physician community, because of its rôle in the US, whereas Doctors.Net in the UK has more physicians both in the absolute and as a percentage of UK doctors. Doctissimo in France has a higher proportion of internet users in France, than any health site to my knowledge around Europe or North America. Various countries, organizations and individuals are doing amazing things. The list would be too long to place here.  But we have previously posted on this blog articles in English about both Gilles Frydman of Acor, a Frenchman in the US and Dave de Bronkart  an American in...the US and author of the remarkable Laugh, Sing, and Eat Like a Pig. I highly recommend a re-read of thoseposts.(And for the Francophones, there are other articles on the French version of Silber's Blog --use the search box-- and the Santé 2.0 Blog.)

At Doctors 2.0 & You conference in Paris, one of our key goals is to highlight the best in healthcare and social media and web 2.0 tools with an international perspective. While we could not of course cover all continents, speakers represented many countries and participants even more, a total of 22. And  amongst the patient advocates present were (by alphabetical order) Kathi Apostolidis (see her bilingual blog), Catherine Cerisey, Gilles Frydman, Jan Geissler who prepared a video for Doctors 2.0, (See also this link to an interview of Jan by Silja Chouquet).

Our next blog post presents Catherine Cerisey, a first in English. 

A Social Media Congratulations to Digestive Disease Week 2011 #ddw11 #doctors20

Let's congratulate DDW11 for a very pro-active social media strategy.

YouTube channel : David Sack, a visiting gastro-enterologist at Digestive Disease Week 2011, did the above video interview, at the "win a Flipcam" contest at the conference.  The DDW organized the video recording of 32 poster presenters and of numerous physicians presenting highlights of the conference here.

Facebook: here is the DDW page  The FB page is another vehicle to tell the story of DDW and be where the audience is. 

Twitter:  1700 tweets approximately tell the story of Digestive Disease Week 2011. You can read the transcript here, gathered on FoxePractice

Téléchargement  #ddw11 - Healthcare Twitter Transcript »

So, if you didn't get to DDW11, you can't get it all online, but you can still get a real flavor for the information and the exchange among physicians, whether they or you were on site or not.

What does it mean for the future of congresses that so much information can be gathered on line. Surely, this is a good thing that gatherings of this nature can go beyond the onsite market. But, not everyone appreciates the transparency of the information and the availability for non-registered attendees...or even for the registered attendees. What will happen to all the publishers of online newsletters, for example?

Anyhow, go AGA, go!

New: Doctors 2.0 & You Video on Paris, Program, Party #doctors20

Where are the Doctors 2.0 & You workshops and plenary taking place? Where is the Mobile Application Demo Party happening and why? Where is the Eiffel Tower? The video will tell you all ! PS Will you join healthcare professionals, pharma managers, tech companies, government employees and payers in Paris? You tell us! 

#BornHIVFree wins digital engagement award #hcsmeu #hesawards

Having had the pleasure of nominating the #BornHIVFree campaign for the 2011 #hesawards managed by Creation HealthCare, am pleased to note that the campaign is the winner of the 2011 People Power Award.

 

 

 

Below, please find the title of the poster I presented on same subject at Medicine 2.0 Maastricht, in November, 2010. 

CardioCam or medical mirror, a gamechanger for healthcare ? #ehealth #health20fr #telemedicine

The short video below demonstrates the basics of CardioCam, developed at MIT. Cardiocam enables accurate detection of heart rate, blood pressure, and other basics by looking at a technology enhanced mirror. Will this lowcost, accurate technology lead to permanent monitoring of everyone, in order to optimize our various parameters? A whole host of scientific, practical and ethical questions to think about...Will today's blood pressure monitor go the way of the buggy whip?

This invention came out in mid 2010 and was noted in December by the NYTimes in their annual idea recognition article. Here is the citation: Ming-Zher Poh, Daniel J. McDuff, and Rosalind W. Picard, "Non-contact, automated cardiac pulse measurements using video imaging and blind source separation," Opt. Express 18, 10762-10774 (2010)
http://www.opticsinfobase.org/abstract.cfm?URI=oe-18-10-10762

 

 

Launching Mayo Clinic Social Network #doctors20 #health20fr #hcsmeu

By alphabetical order, the following institutions are charter members of the Mayo Clinic Social Media Health Network:

    * Inova Health System, Reston, Virginia, USA    * Mission Health Care, Asheville, North Carolina, USA    * Mayo Clinic, Rochester, Minnesota, USA    * Swedish Medical Center, Seattle, Washington, USA    * Radboud University Nijmegen Medical Centre, Nijmegen, Netherlands

Congratulations from here in Europe to all, and in particular to Lucien Engelen. @zorg20

#LeWeb Bravo Loic Le Meur = @loic #health20fr

For those of you have been following with pleasure the Le Web conference created by Loïc and Geraldine Le Meur in 2004, you know that it has become an interesting example of the power of livestreaming and Twitter.

2115 people are in the conference

2000 people are following the livestream

7849 people are tweeting about #leweb

Two factoids from LeWeb:

according to Carlos Ghosn, 15% of Renault's marketing budget is for digital.

Orange is announcing, via Stephane Richard CEO, the 4G telephone in the next 18 to 24 Months.

Quebec's Social Media campaign for more family doctors #health20fr #hcsmeu

Quebec's population is seriously lacking in family physicians and has gone to  Facebook and YouTube to attract national if not international attention.

<-- Scene from the video

--> Photo from Facebook

Yes, health care systems everywhere need to dialogue with real people, when and where they are...and of course provide solutions...Dialogue does not suffice, but there at least has to be dialogue to get to the solutions...So, how many such organizations are getting around to appointing social media savvy folks?

 

 

 

The Chilean miner rescue, # telemedicine, and the philosophy of life

As one of the many following the Chilean miner rescue, it occurred to me, beyond the incredible human interest story, that this event highlighted various lessons beyond the courage of the miners themselves. As you can see from these 3 points, given the extreme situation, the rules of the game changed.

a) telemedicine was embraced  (read about the Zephyr Physiological Status Monitoring system)

b) there was delegation of medical responsibility to non-physicians 

c) cost of $10 to 20 million was apparently not an issue in the saving of human life (several hundred thousand dollars per person) - although the mining company is being asked to reimburse 2/3 of the cost.

Hmmm. I'll leave you to ponder the above.

Health Care Social Media EU #hcsmeu celebrates 1st Birthday Aug. 6 2010

Who said that Europe closes up in August? Today is the 1st Birthday of the Health Care Social Media EU community and it's an active time all around with birthday parties this evening in various capitals as each chapter makes its national identity better known. For France, the party is announced on Facebook and there will be more surprises announced during the party by @tiphainemf, @xbrochart and myself @health20paris.

 

At the risk of adding  one more definition, HCSMEU is about the use of social media in healthcare in Europe to bring people together in a way that contributes to better health. The HCSMEU community has been built by its founders @andrewspong and @whydotpharma primarily through a series of weekly Tweet-ups or written chats via Twitter since last Aug 2009, on Fridays from 1 to 2pm. They are visible by following the hashtag #hcsmeu on Twitter, Tweetdeck, Hootsuite etc, 
 The hashtag stream can be seen by clicking on the blue and white image. The tweet-ups bring people together to answer 3 questions that have been posted by the participants. They begin and end promptly and typically Andrew pushes us along from one question to the next...Hmm. The 3rd question is not the best spot to have. 

There are also numerous posts on many blogs, a wiki, a daily twitter paper, unconferences.

And for today, Andrew (assisted by Monty) has made a brief birthday speech.

 

PatientsLikeMe-Brief Video from Parkinson Patients #hcsmeu

Health 2.0 Europe #health2eu Demo of I want great care, rating site from Neil Bacon

Dutch video on Health 2.0 "it's up to you" produced by RVZ, independent council #health2eu

At the Health 2.0 Europe conference keynote session, Pieter Vos presented the report on Health 2.0 prepared for the Dutch Ministry of Health by the RVZ, independent council. The report will soon be available in English and we'll help make it known. Self-management is an important term in the report. It also speaks of "healthcare consumers" and all they can do thanks to the Internet (online communities, consultations, PHR) and as well that the government must examine its policies to see how they can be improved. This may be the first such report and video from a public body.

#health2eu Health 2.0 Europe introductory video

#health2eu Health 2.0 Europe intro video from Denise Silber on Vimeo.

A 2.0 Interview of Chris Flim, our Health 2.0 Ambassador to the Netherlands

 We interviewed Chris Flim, our Health 2.0 Europe Ambassador to the Netherlands, in Barcelona during eHealthWeek. He's looking forward to attending Health 2.0 Europe and, if you listen to the brief video, you will learn one important thing about the Netherlands and Health 2.0 which will make you proud to be Dutch and probably jealous if you are not.

Health 2.0 Europe's Denise Silber interviews Chris Flim Netherlands from Denise Silber on Vimeo.

Health 2.0 Europe speaker : Ségolène Aymé, OrphaNet

Video interview of Ségolène Aymé, founder of OrphaNet, who has by the way, added Google Translate to its already multilingual pages. Ségolène will be speaking at Health 2.0 Europe April 6 2010, Paris.

Can't imbed this channel  ;-( but you can click here to see the interview on YouTube

http://www.youtube.com/user/eurordis#p/a/u/0/p-bB30q_Yzk

Health 2.0 Europe - webinar from California, Paris, Naples, Kerry

Health on the Net Foundation goes Web 2.0 / Interview with Celia Boyer

The subject of the quality of healthcare information on the Internet is rich and recurring. The main question we hear regularly is whether or not Internet users are finding quality health information. But it’s not the only one. There is also: how governments can/should protect citizens? And more recently, do Web 2.0 tools give users more power or make them more exposed to poor quality information?

This article focuses on Health on the Net. Established in 1995 in Geneva Switzerland, HON is the longest running, most widespread code of conduct dedicated to health and the Internet.

 HON will release its next Web 2.0 tool during the Health 2.0 Europe Conference, Paris April 6-7, 2010 !

(Video) Health 2.0 Europe speaker : Denise Silber, Basil Strategies

Catch a glimpse of me below, being interviewed in San Francisco, before we had even mapped out the full program at Health 2.0 Europe Paris.

And if you continue on to view some of the other videos of our speakers, you will realize that the diversity of Europe, the linguistic, cultural, and regulatory differences are in fact a source of tremendous creativity. Amazing things are going on in Health 2.0 in Europe.

And why you don't know about them?
a) because of the language barrier.

b) according to my quick survey ;-); web site founders outside of the US are so far  less likely to post videos of themselves than are us Americans, no matter where we live...But that will change.

So, there will be a big "before and after" at Health 2.0 Europe, as national stars become international stars!

(video) Health 2.0 Europe speaker : Mohammad Al Ubaydli Patients Know Best

Catch Dr Mohammad Al Ubaydli speaking about electronic health records. Meet him in person at Health 2.0 Europe.

Improving patient care with the EPR - Mohammad Al-Ubaydli from Mohammad Al-Ubaydli on Vimeo.

(video) Health 2.0 Europe speaker : Gilles Frydman, ACOR

Catch a glimpse of GIlles Frydman whom you'll get to meet in person at Health 2.0 Europe.

(video) Health 2.0 Europe speaker : Christian Angele, Imedeo.de

Catch a glimpse of Health 2.0 Europe speaker Christian Angele. The interview here is in German. But you'll get to speak with him in English about Imedeo, his exciting online community

(video) Health 2.0 Europe speaker : Jean-Louis La Porte, Tribu Cancer

Catch an interview (in French) with Jean-Louis Laporte, TribuCancer, patient association, who will speak at Health 2.0 Europe

(video) Health 2.0 Europe speaker : Celia Boyer, HON

Catch a glimpse (in French) of Celia Boyer, HON, who will be speaking in English at Health 2.0 Europe

(video) Health 2.0 Europe speaker : Etienne Caniard, Haute Autorité de Santé

Catch a glimpse (in French) of Health 2.0 Europe speaker, Etienne Caniard.
Label HON pour les sites santé
envoyé par dailyglub. - Vidéos des dernières découvertes scientifiques.

(video) Health 2.0 Europe speaker : Susannah Fox

Preview speaker Susannah Fox, whom you'll get to meet in person at Health 2.0 Europe, Paris April 6-7.

(video) Health 2.0 Europe speaker : Ben Heywood, PatientsLikeMe.com

Preview some of the speakers you'll meet in person at Health 2.0 Europe. Here briefly is Ben Heywood, PatientsLikeMe

(video) Health 2.0 Europe speaker : Steven Krein, Organized Wisdom